What is ME?

What is M.E.?

M.E. (Myalgic Encephalomyelitis), which is also known as Chronic Fatigue Syndrome, is a chronic, disabling illness, which can affect both adults and children. It is currently estimated that there are over 150,000 sufferers throughout the U.K., and around 25,000 of these are children.

After many years of controversy surrounding this illness and trying to get proper recognition of its existence, the World Health Organisation now classifies M.E. as a “disease of the nervous system”. It is commonly triggered by a viral infection and anyone, regardless of age, sex or ethnic background can develop the illness.

The symptoms vary from person to person, but the most common features are:
§ Profound, lasting fatigue, which does not improve with rest
§ Severe joint and muscle pain
§ Persistent headaches
§ Impaired memory and concentration
§ Sore throat, and/or enlarged lymph glands
§ Abdominal pain and/or nausea
§ Disturbed sleep pattern
§ Poor temperature regulation
§ Sensitivity to light and noise

There is no known cure for M.E., although an early diagnosis, adequate rest in the early stages and effective advice on the management of the illness can improve the chances of a full recovery drastically. M.E. can last between a few months and many years. In fact, only 20 % of sufferers are likely to make a full recovery in two to four years. Of the remaining group, around 60% improve significantly over time, whilst 20% become chronically and severely disabled.

Most sufferers are unable to work, having had to give it up after the onset of the illness, and they are then reliant on whatever state benefits they can claim. Sadly, due to the ongoing misunderstanding surrounding the illness, many sufferers do not receive the level of benefits they are entitled to, and endure financial hardship as a result.